[Home ]      
:: Home :: About Journal :: Registration :: Article Submission :: Contact us :: Site Map ::
:: Volume 8, Number 4 (2016) ::
Back to browse issues page IJBC 2016, 8(4): 108-111
Health-Related Quality of Life in β Thalassemia Major Children in North of Iran
Abbas Jafari-Shakib, Ali Davoudi- Kiakalaye, AA Pour-Fathollah, Reza Jafari-Shakib, Zahra Mohtasham-Amiri *
Department of Community and Preventive Medicine, Guilan University of Medical Sciences, Rasht, Iran
Abstract:   (393 Views)

Background: Advances in treatment of thalassemia major have improved the life expectancy of the patients and therefore their quality of life as other chronic diseases. This study was conducted to assess health- related quality of life in these patients in Guilan province.
Methods: In a cross-sectional study, thirty-one children, aged 8-12 years, with β-thalassemia major were interviewed in Guilan, northern Iran, from January to March 2016. Source of data were health centers of the province and its satellite centers, blood transfusion organizations, general hospitals and private clinics. Health-related quality of life was assessed by using PedsQL questionnaire. The Questionnaire was completed at baseline by all patients and their parents. T and Chi-square tests were used as appropriated. 
Results: Of the 31 children, 58.1% were girls. Total summary score in children was 75.9±20.1. Physical, Emotional, social, school and psychosocial functioning scores were 70.6±24, 73.3±22.9, 85.9±21, 74.1±21.5, 77.7±19.7, respectively. None of the children underwent splenectomy. Sex, Serum ferritin and hemoglobin levels did not show any association with quality of life in this study. Conclusion: Although quality of life in these patients was acceptable, HRQOL showed lower scores in comparison to the healthy population. It seems more social and familial support for increasing the quality of life of these children is surely needed.

Full-Text [PDF 464 kb]   (290 Downloads)    
: Research | Subject: Pediatric Hematology & Oncology
Received: 2016/08/13 | Accepted: 2016/12/15 | Published: 2017/01/4
* Corresponding Author Address: Department of Community and Preventive Medicine, Guilan University of Medical Sciences, Rasht, Iran
Send email to the article author

Add your comments about this article
Your username or email:

Write the security code in the box >



XML   Persian Abstract   Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Jafari-Shakib A, Davoudi- Kiakalaye A, Pour-Fathollah A, Jafari-Shakib R, Mohtasham-Amiri Z. Health-Related Quality of Life in β Thalassemia Major Children in North of Iran. IJBC. 2016; 8 (4) :108-111
URL: http://ijbc.ir/article-1-681-en.html
Back to browse issues page Volume 8, Number 4 (2016)
مجله ی خون و سرطان ایران Iranian Journal of Blood and Cancer
Persian site map - English site map - Created in 0.048 seconds with 791 queries by yektaweb 3347